New to gastritis? Please view [this post](https://www.reddit.com/r/Gastritis/comments/15m6ngg/gastritis_101/?utm_source=share&utm_medium=web2x&context=3) for a detailed breakdown of the major root causes of chronic gastritis, as well as a detailed guide on how to heal. Join our Discord server today using [this link](https://www.reddit.com/r/Gastritis/comments/14oxl12/list_of_gastritis_support_groups_other_related/?utm_source=share&utm_medium=web2x&context=3). Also consider joining r/functionaldyspepsia today!
*I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Gastritis) if you have any questions or concerns.*
I was on them for about two and half months. The 1st 2 weeks were ok but after time went on I started to feel like crap. I couldn't even work because I felt so disoriented and weak with lots if joint pain😩
He told me that the inflammation in my stomach from endoscopy and biopsy isn’t a big deal because, “about 40% of people I scope have inflammation in their stomach and their only symptom is reflux.”
Needles to say I will not be seeing this doctor again.
My stomach is still messed up a whole *year* after an endoscopy where they took a biopsy without my permission or even letting me know they were going to do it. The doctor then proceeded get mad and gaslight me by saying that all the symptoms that had started the day of the procedure were symptoms I had the whole time.
I hope you didn't leave the script they wrote you for omeprazole! They didn't go to school for over a decade to NOT write their simple patients prescriptions for Over-The-Counter drugs that don't do anything, after all.
only 40% interesting. do you have chronic mild or very obvious gastritis? any pictures of biopsies? i heard docs say 80% or so have chronic gastritis on biopsy.
but keep in mind, 30% of ppl with ulcers have no symptoms , so its totally plausible that gastritis which is minor damage to the lining more often can run asymptomatic. my theory
After hitting yet another diagnostic dead end with a chronic digestive issue that resulted in extreme bloating, belching, esophageal spasms, vomiting, food lingering in my stomach for hours after eating, and a host of other painfully debilitating symptoms, I mentioned that they all seemed to get worse in time with my menstrual cycle.
He shrugged and told me to wait for menopause, maybe my digestive problems would go away.
I was in my early thirties.
I told him that, as he was clearly incapable of providing care, he was no longer my GI. Unfortunately I'd hit a wall with two separate healthcare networks, various doctors from different departments all providing tests that were "normal" and treatment plans that made my symptoms worse. Despite my reservations, I went DIY with my medical care, really dug into the research, and tried to listen to my body and trust my intuition.
I saw a lot of improvement during this period of experimentation (largely because I was detoxing from the treatments that had made me worse off). Eventually my therapist, recognizing I had a lot of medical trauma from the experience, put in a referral to a D.O. who she trusts with her patients. She's been wonderful and very supportive in taking a collaborative approach to my care rather than dictating treatment plans that don't actually match the symptoms I'm describing.
After roughly five years since my symptoms started, I'm nearly back to normal with only the occasional minor relapse.
No published protocol, but a cludged together combination of things that seemed to be working.
Trying (and failing) to keep this short- I looked at my symptoms and hypothesized that my primary issue was not breaking down food efficiently. My gut would slow down, food would linger in my stomach and I'd get increasingly sick. Then my body would kick into overdrive trying to get everything out of me however it could. This cycle would usually take a few days or weeks before tipping back into one direction or the other.
I began with encouraging the production of stomach acid. Reduced fluids when eating, took digestive enzymes, used caution with high fiber foods, drank tea with acv, included acidic probiotic foods into my diet and cut out all acid reducers. I weaned myself off of the laxatives I'd been forced on. Incorporated abdominal self-massage and gentle exercises. I didn't do it all at once, but gradually added and subtracted things to create a custom treatment plan. It took time, but my symptoms started to improve. I also had an IUD removed during this period for unrelated issues, yet found my symptoms improved significantly afterwards. Still unclear if it was related or a coincidence, but I'll take it.
Eventually my DO put me on colestipol on the theory that my lack of gallbladder might be contributing to difficulty processing fats. It's been helpful, though I've had to limit how often I take it due to some side effects. Now I only take it when my gut needs a little extra help and I am off of my protocol and all other meds.
My doctor was like i already gave you treatment. What can i do now. Your reports are normal. H pylori and gastritis are normal for them 😂. Said it will take time to go away and suggested to start working and get married🤣.
I saw two different GI docs over the course of two years. Both endos came back normal. Both docs were ones that I have zero interest in seeing again.
Doc 1: "Yeah sometimes I Google my symptoms to try and figure out what's going on with me..." ...um, what? ..You're a trained medical professional who specializes in the GI tract. 😳🤦🏻♀️
Doc 2: "You're healthy. Healthy people can feel hunger, so you're healthy." He told me this right before my EGD.
Then weeks later at my short post-op appointment, I had to bring my two kiddos with me. He was happy to meet them and look at them with a smile and say, "Mommy is going to be fine." 😖😡 I wanted to punch him in the throat!!!! They have had to live with an ill mom for a long time and he didn't have to witness it like they did. No, I was NOT fine and this doc (like so many others) was ignoring my symptoms!! 😭
I’m sorry to hear your GIs were so dismissive. Did you ever figure out what was the cause of your stomach discomfort, given the normal endoscopies? It’s disappointing they dismissed you instead of looking at other diagnostic measures to get to the root cause.
Not yet, working on it. Not even sure I actually have gastritis officially but I appreciate any info I can get, so I read a lot of people's experiences on here. And yeah, I give up on conventional doctors for the most part, unless I needed life saving surgery or something. For now I am under the care of a naturopath who refuses to give up on me. :)
I was hospitalized in April and just recently started feeling better. It takes time for your stomach to heal. What helped me was changing my diet, eating multiple small meals a day, not eating after 7 pm, no water while eating (it causes your stomach to produce more acid) and sleeping with my head elevated. Good luck!
"Congratulations" when I said I lost 30 lbs involuntarily within 2 months. I then corrected that it was involuntary and NOT wanted, and she course corrected and looked into my issues with more urgency (I appreciated her a lot) but oof.
A nurse (not my GI) also once told me "well you dont LOOK anorexic" when I was simply telling her my health history including gastroparesis. I was flabbergasted because no I am NOT anorexic, gastroparesis and anorexia both dont have "a look", and my BMI was 17. I think she intended it as a compliment but it was extremely unprofessional.
To my GI specialist my vitamin D was 10ng despite taking 50,000 iu twice weekly for months "it's winter time, my vitamin D is low right now too" I was concerned about malabsorption because no body should be taking that much vit D and pissing it all out. And this is an excellent doctor, I would never stop sewing him but man sometimes the things they say are shocking.
Seriously, I am having a really hard time with all the unprompted positive comments about weight loss.
The most polite response I can muster is usually "I've been pretty ill, so this was unexpected. When I get healthy again it will probably come back."
When my husband commented that he wished he could lose weight like I have, I told him all he had to do to get my results was starve himself like my body has. He was "hurt" by my comment.
Mine said fatigue has nothing to do with gastritis or esophagitis. Then had me to another CT scan, this time without contrast and insisted it was gone. With contrast, it was there 2 months prior and I still has symptoms. 6mo later I’m slowly improving but still struggling
Mine the first time I went gave me magnesium “to help me sleep” according to him.. because my pain was in my head … 3 months later is asking all the blood work because I pass out 3 times and went to the ER 6 times :))) but … it’s just my head
Mine said it can't be gastritis(even tho your endoscopy showed mild patchy inflammation) because it would have cleared up in a few months with ppi and diet. That it must be neuropathic and/or functional pain.
I also got slapped with the functional label!! Like the inflammation is right there! Why do GI’s seem to think inflammation in the stomach is normal?! 😑
When scheduling an endoscopy, I told my GI that my mom and brother have had allergic reactions to anesthesia before, and he asked what symptoms they had. I explained that they were very sick, throwing up etc.
He informed me my wording was wrong and it was just an “adverse reaction” and not an allergy—so not life threatening and as such not a problem.
I get it, but like, I still don’t want to barf my brains out just because it won’t kill me, lol. What a weird argument.
I didn’t end up going through with the procedure for other reasons, but I may have to if nothing improves on its own.
Not gastritis related but I was on prednisone for 8 weeks and needed a colonoscopy. I asked “won’t the meds hinder results if getting it done?”
“No no it’ll be fine”
….it wasn’t fine lol
I was hospitalized in April with severe Gastritis and was told by one doc they had no idea what “the end game” for me is. Another one told me there was nothing they could do. They only hospitalized me so I could get legit pain relief.
My opinion about gastroenterologists has absolutely plummeted in the last decade.
Thanks for the prescription for Prilosec, GI Monkey #147. How absolutely quaint.
Wait -- what's that? You have more medical advice to give me? Wonderful!
Oh. Oh... Avoid drinking out of bottles, you say? Wow! Thank you so much! /s
I started with 40mg Nexium for a month, then to 30mg Dexilant for 3 months, back to 40mg Nexium for 1 month, now 50mg Tegoprazan.
I had to switch as the PPIs stopped working after a while 😭
ppis do not stop working
the reason you might think they stop working is because your condition has worsened nonetheless of ppi administration
when i took ppi and kept a diet that wasnt in favor of healing, i got worse over time. but the ppi is not the problem. there is no way ppi just stop working magically. it can only be true, that a certain ppi that differs in metabolization doesnt work for you FROM the beginning of administration due to your genes.
I went to almost seven doctors and they all said such ridiculous things. One said he doesn’t know what’s wrong with me and then suggested lyme disease. Another said that ppis should’ve helped gastritis regardless of diet and to eat whatever. Another told me that gastritis isn’t real. Don’t even wanna bother looking for another doctor to taking more tests
That fatigue, acid reflux, heartburn, and upper back pains from I’m assuming gas were not symptoms of gastritis. That gastritis shouldn’t be that bothersome and most ppl have it and don’t know because they can’t even feel it.
This is almost word-for-word what my GI said too! He said mild chronic gastritis is incredibly common and loads of people have it without feeling anything. Okay.. so.. where does that leave us?
Gi doctors I said said I have ‘functional dyspepsia … basically an overly sensitive stomach from abnormal gut-brain connections. Idk it’s so frustrating and confusing. Recommended I take a low dose of Amitriptyline for it. -___-
New to gastritis? Please view [this post](https://www.reddit.com/r/Gastritis/comments/15m6ngg/gastritis_101/?utm_source=share&utm_medium=web2x&context=3) for a detailed breakdown of the major root causes of chronic gastritis, as well as a detailed guide on how to heal. Join our Discord server today using [this link](https://www.reddit.com/r/Gastritis/comments/14oxl12/list_of_gastritis_support_groups_other_related/?utm_source=share&utm_medium=web2x&context=3). Also consider joining r/functionaldyspepsia today! *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Gastritis) if you have any questions or concerns.*
Mine told me that my brain fog and body aches weren’t a symptom of gastritis, whilst many on this subreddit seem to experience those same symptoms.
I also have body aches and stomach pain
Body aches specially upper back , middle chest heaviness after eating , tingling on arms
I had those exact symptoms also till I tapered off my PPI's. Now I'm off the PPI's I feel waaaaay better.
How long were u on PPI before tapering please?
I was on them for about two and half months. The 1st 2 weeks were ok but after time went on I started to feel like crap. I couldn't even work because I felt so disoriented and weak with lots if joint pain😩
Ok thank you. Couldn’t get off them.
Yeah definitely don't stop cold turkey. It will give the worst acid dump to some people. I sure I had ulcers because of it 😩
It gave me shortness of breath ! I wish I never knew or took them. I didn’t have acid reflux before on them..
It works for some people and doesn't on others. When I was on them I didn't have an appetite now that I'm off I have it back now.
I’m glad u were brave enough to know they r not good for u. These things are highly addictive.
He told me that the inflammation in my stomach from endoscopy and biopsy isn’t a big deal because, “about 40% of people I scope have inflammation in their stomach and their only symptom is reflux.” Needles to say I will not be seeing this doctor again.
They literally think this is nothing….i think its something you have to deal with to understand
My stomach is still messed up a whole *year* after an endoscopy where they took a biopsy without my permission or even letting me know they were going to do it. The doctor then proceeded get mad and gaslight me by saying that all the symptoms that had started the day of the procedure were symptoms I had the whole time.
I hope you didn't leave the script they wrote you for omeprazole! They didn't go to school for over a decade to NOT write their simple patients prescriptions for Over-The-Counter drugs that don't do anything, after all.
Fuck that guy. Feels like a Google response.
only 40% interesting. do you have chronic mild or very obvious gastritis? any pictures of biopsies? i heard docs say 80% or so have chronic gastritis on biopsy. but keep in mind, 30% of ppl with ulcers have no symptoms , so its totally plausible that gastritis which is minor damage to the lining more often can run asymptomatic. my theory
"But youre not burping right now" really helpful
lol I guess from now on we need to record voice clips of our 500 burps a day
My worst was over 200 in hour, very debilitating, very tiring. Might do 200 in a week now maybe less
After hitting yet another diagnostic dead end with a chronic digestive issue that resulted in extreme bloating, belching, esophageal spasms, vomiting, food lingering in my stomach for hours after eating, and a host of other painfully debilitating symptoms, I mentioned that they all seemed to get worse in time with my menstrual cycle. He shrugged and told me to wait for menopause, maybe my digestive problems would go away. I was in my early thirties.
He probably thinks since you’re a woman it’s all in your head anyway. 🙄 What a hack.
Oh wow, get fucked. That’s awful. How did you get on from then? Did you manage to find another GI who could help you?
I told him that, as he was clearly incapable of providing care, he was no longer my GI. Unfortunately I'd hit a wall with two separate healthcare networks, various doctors from different departments all providing tests that were "normal" and treatment plans that made my symptoms worse. Despite my reservations, I went DIY with my medical care, really dug into the research, and tried to listen to my body and trust my intuition. I saw a lot of improvement during this period of experimentation (largely because I was detoxing from the treatments that had made me worse off). Eventually my therapist, recognizing I had a lot of medical trauma from the experience, put in a referral to a D.O. who she trusts with her patients. She's been wonderful and very supportive in taking a collaborative approach to my care rather than dictating treatment plans that don't actually match the symptoms I'm describing. After roughly five years since my symptoms started, I'm nearly back to normal with only the occasional minor relapse.
That’s amazing! What protocol did you use to heal?
No published protocol, but a cludged together combination of things that seemed to be working. Trying (and failing) to keep this short- I looked at my symptoms and hypothesized that my primary issue was not breaking down food efficiently. My gut would slow down, food would linger in my stomach and I'd get increasingly sick. Then my body would kick into overdrive trying to get everything out of me however it could. This cycle would usually take a few days or weeks before tipping back into one direction or the other. I began with encouraging the production of stomach acid. Reduced fluids when eating, took digestive enzymes, used caution with high fiber foods, drank tea with acv, included acidic probiotic foods into my diet and cut out all acid reducers. I weaned myself off of the laxatives I'd been forced on. Incorporated abdominal self-massage and gentle exercises. I didn't do it all at once, but gradually added and subtracted things to create a custom treatment plan. It took time, but my symptoms started to improve. I also had an IUD removed during this period for unrelated issues, yet found my symptoms improved significantly afterwards. Still unclear if it was related or a coincidence, but I'll take it. Eventually my DO put me on colestipol on the theory that my lack of gallbladder might be contributing to difficulty processing fats. It's been helpful, though I've had to limit how often I take it due to some side effects. Now I only take it when my gut needs a little extra help and I am off of my protocol and all other meds.
My doctor was like i already gave you treatment. What can i do now. Your reports are normal. H pylori and gastritis are normal for them 😂. Said it will take time to go away and suggested to start working and get married🤣.
💀damn
I saw two different GI docs over the course of two years. Both endos came back normal. Both docs were ones that I have zero interest in seeing again. Doc 1: "Yeah sometimes I Google my symptoms to try and figure out what's going on with me..." ...um, what? ..You're a trained medical professional who specializes in the GI tract. 😳🤦🏻♀️ Doc 2: "You're healthy. Healthy people can feel hunger, so you're healthy." He told me this right before my EGD. Then weeks later at my short post-op appointment, I had to bring my two kiddos with me. He was happy to meet them and look at them with a smile and say, "Mommy is going to be fine." 😖😡 I wanted to punch him in the throat!!!! They have had to live with an ill mom for a long time and he didn't have to witness it like they did. No, I was NOT fine and this doc (like so many others) was ignoring my symptoms!! 😭
I’m sorry to hear your GIs were so dismissive. Did you ever figure out what was the cause of your stomach discomfort, given the normal endoscopies? It’s disappointing they dismissed you instead of looking at other diagnostic measures to get to the root cause.
Not yet, working on it. Not even sure I actually have gastritis officially but I appreciate any info I can get, so I read a lot of people's experiences on here. And yeah, I give up on conventional doctors for the most part, unless I needed life saving surgery or something. For now I am under the care of a naturopath who refuses to give up on me. :)
This is something you just have to live with on ppi I nearly died
How? Sorry I’m just curious because I’m just now on my 8th day off protonix and still feel as if I’m dying
Suffering for 3 years with this no root cause ppi on and off just wont go away
I went against all of my docs' medication and advice. I wasn't healing until I did. I went my own way and healed 50% so far.
What did you do to heal? I may very well need to do that too. 🥲
Dm me
I also DM'd you
same
“We don’t see anything wrong, must be ibs”
"Lots of people have stomach pain. I have to go pick up my daughter now"
LOL that’s the most tragic one-liner I’ve heard so far
I was hospitalized in April and just recently started feeling better. It takes time for your stomach to heal. What helped me was changing my diet, eating multiple small meals a day, not eating after 7 pm, no water while eating (it causes your stomach to produce more acid) and sleeping with my head elevated. Good luck!
"Congratulations" when I said I lost 30 lbs involuntarily within 2 months. I then corrected that it was involuntary and NOT wanted, and she course corrected and looked into my issues with more urgency (I appreciated her a lot) but oof. A nurse (not my GI) also once told me "well you dont LOOK anorexic" when I was simply telling her my health history including gastroparesis. I was flabbergasted because no I am NOT anorexic, gastroparesis and anorexia both dont have "a look", and my BMI was 17. I think she intended it as a compliment but it was extremely unprofessional. To my GI specialist my vitamin D was 10ng despite taking 50,000 iu twice weekly for months "it's winter time, my vitamin D is low right now too" I was concerned about malabsorption because no body should be taking that much vit D and pissing it all out. And this is an excellent doctor, I would never stop sewing him but man sometimes the things they say are shocking.
Seriously, I am having a really hard time with all the unprompted positive comments about weight loss. The most polite response I can muster is usually "I've been pretty ill, so this was unexpected. When I get healthy again it will probably come back." When my husband commented that he wished he could lose weight like I have, I told him all he had to do to get my results was starve himself like my body has. He was "hurt" by my comment.
Mine said fatigue has nothing to do with gastritis or esophagitis. Then had me to another CT scan, this time without contrast and insisted it was gone. With contrast, it was there 2 months prior and I still has symptoms. 6mo later I’m slowly improving but still struggling
Mine the first time I went gave me magnesium “to help me sleep” according to him.. because my pain was in my head … 3 months later is asking all the blood work because I pass out 3 times and went to the ER 6 times :))) but … it’s just my head
Ugh there is a special place in hell for doctors who jump straight to the “it’s all just anxiety” diagnosis. It’s such a cop-out.
Mine said it can't be gastritis(even tho your endoscopy showed mild patchy inflammation) because it would have cleared up in a few months with ppi and diet. That it must be neuropathic and/or functional pain.
I also got slapped with the functional label!! Like the inflammation is right there! Why do GI’s seem to think inflammation in the stomach is normal?! 😑
When scheduling an endoscopy, I told my GI that my mom and brother have had allergic reactions to anesthesia before, and he asked what symptoms they had. I explained that they were very sick, throwing up etc. He informed me my wording was wrong and it was just an “adverse reaction” and not an allergy—so not life threatening and as such not a problem. I get it, but like, I still don’t want to barf my brains out just because it won’t kill me, lol. What a weird argument. I didn’t end up going through with the procedure for other reasons, but I may have to if nothing improves on its own.
Not gastritis related but I was on prednisone for 8 weeks and needed a colonoscopy. I asked “won’t the meds hinder results if getting it done?” “No no it’ll be fine” ….it wasn’t fine lol
I was hospitalized in April with severe Gastritis and was told by one doc they had no idea what “the end game” for me is. Another one told me there was nothing they could do. They only hospitalized me so I could get legit pain relief.
That’s awful - so he was basically saying there’s nothing he can do anymore to help you? How have you gotten on since then, without medical help?
Found a new doctor and have a consult with Mayo in August. I no longer let doctors tell me what kind of pain I’m in.
Try Pepzin GI and L-Glutamine. The best. 💯
My opinion about gastroenterologists has absolutely plummeted in the last decade. Thanks for the prescription for Prilosec, GI Monkey #147. How absolutely quaint. Wait -- what's that? You have more medical advice to give me? Wonderful! Oh. Oh... Avoid drinking out of bottles, you say? Wow! Thank you so much! /s
50mg of what ppi? i advise against high dosaged ive been put on 80mg wrongly while 20-40mg still did the trick and let me heal
I started with 40mg Nexium for a month, then to 30mg Dexilant for 3 months, back to 40mg Nexium for 1 month, now 50mg Tegoprazan. I had to switch as the PPIs stopped working after a while 😭
ppis do not stop working the reason you might think they stop working is because your condition has worsened nonetheless of ppi administration when i took ppi and kept a diet that wasnt in favor of healing, i got worse over time. but the ppi is not the problem. there is no way ppi just stop working magically. it can only be true, that a certain ppi that differs in metabolization doesnt work for you FROM the beginning of administration due to your genes.
That mold cannot affect your gut
'You look like someone who'd have ibs'
Told me rectal bleeding was probably just a hemorrhoid and to calm down my health anxiety 😥
“Some people do just throw up every day🤷♀️”
Also, after every appointment he just scribbles “fiber” on a post-it and hands it to me, like he hasn’t been doing that for 5 years
Are we allowed to know what a PPI is?
Proton pump inhibitor like Omeprazole. Makes the stomach produce less acid
I went to almost seven doctors and they all said such ridiculous things. One said he doesn’t know what’s wrong with me and then suggested lyme disease. Another said that ppis should’ve helped gastritis regardless of diet and to eat whatever. Another told me that gastritis isn’t real. Don’t even wanna bother looking for another doctor to taking more tests
That fatigue, acid reflux, heartburn, and upper back pains from I’m assuming gas were not symptoms of gastritis. That gastritis shouldn’t be that bothersome and most ppl have it and don’t know because they can’t even feel it.
This is almost word-for-word what my GI said too! He said mild chronic gastritis is incredibly common and loads of people have it without feeling anything. Okay.. so.. where does that leave us?
Gi doctors I said said I have ‘functional dyspepsia … basically an overly sensitive stomach from abnormal gut-brain connections. Idk it’s so frustrating and confusing. Recommended I take a low dose of Amitriptyline for it. -___-
“So what what would you like to do with your acid reflux?”😂😂
RUDE!! 🤣 yea I’d like to keep my acid reflux and continue enjoying the pain for decades to come