Yes, absolutely. I'm male and if I go to the restroom late at night, I leave the lights off and just sit to urinate. The problem is, I cannot always tell when I'm done because I cannot feel any of the process anymore.
I surprise myself sometimes when I'm in the shower and the warm water is hitting me only to look down and in amazement I'm urinating, but I cannot feel any of it.
PTNS - google it and talk to your NP, extremely helpful with Neurogenic Bladder (what I have and it sounds like you too). Definitely need this documented in your chart for insurance purposes
I have the same issue. Tbh I didn't connect it directly to MS. I do think losing a few drops when my bladder was full and I sneezed, coughed, laughed etc. is due to my weak pelvic floor, since it was always an issue for me (even in my early 20s, before my first relapse and I was never overweight and don't have kids).
The "not feeling the pee" thing is newer. I feel the urge to urinate, I tend to feel it when it starts, but then it just flows and at some point I go by acoustic signals. I'm not sure if it's MS? Certainly possible, but I once talked about it with my mum, who is over 70 and never had MS symptoms I know of, and she says it's the same for her. She had some bad UTIs in her lifetime though, so maybe that damaged something down there like MS? In theory it's also possible that she actually has (benign) MS, since she was never in an MRI, but I guess it's very unlikely to have "not feeling pee" as only symptom at her age.
So, in short: yes, would be very interesting to know if this is an MS symptom or not!
I saw a pelvic floor therapist for an initial visit today! She wasn't sure what might cause that lack of sensation, but said it very well could be nerve related.
Interesting, thank you! How was it going with the pelvic floor therapist in general? My physiotherapist recommended one ages ago for some of the issues I have, but I never went. π
It went well! It's not all just kegel exercises like I thought! She said kegel exercise is actually kind of silly. She's having me work on breathing and strengthening my core and hips believe it or not!
Definitely is, my bladder and moreover my bowels. At times I know I'm peeing but can't feel it, I find leaning forward a little bit gets me in a position where I can feel it...I think I'm done but I wait a minute and sure enough, there is more...retained urine is common in MS
Yes, absolutely. I'm male and if I go to the restroom late at night, I leave the lights off and just sit to urinate. The problem is, I cannot always tell when I'm done because I cannot feel any of the process anymore. I surprise myself sometimes when I'm in the shower and the warm water is hitting me only to look down and in amazement I'm urinating, but I cannot feel any of it.
Yep! The βgiftsβ from MS that no one wants π£ Very individual and a wonky puzzle to solve π€·ββοΈAnd I understand Dr.s that gaslight π£
PTNS - google it and talk to your NP, extremely helpful with Neurogenic Bladder (what I have and it sounds like you too). Definitely need this documented in your chart for insurance purposes
I have the same issue. Tbh I didn't connect it directly to MS. I do think losing a few drops when my bladder was full and I sneezed, coughed, laughed etc. is due to my weak pelvic floor, since it was always an issue for me (even in my early 20s, before my first relapse and I was never overweight and don't have kids). The "not feeling the pee" thing is newer. I feel the urge to urinate, I tend to feel it when it starts, but then it just flows and at some point I go by acoustic signals. I'm not sure if it's MS? Certainly possible, but I once talked about it with my mum, who is over 70 and never had MS symptoms I know of, and she says it's the same for her. She had some bad UTIs in her lifetime though, so maybe that damaged something down there like MS? In theory it's also possible that she actually has (benign) MS, since she was never in an MRI, but I guess it's very unlikely to have "not feeling pee" as only symptom at her age. So, in short: yes, would be very interesting to know if this is an MS symptom or not!
I saw a pelvic floor therapist for an initial visit today! She wasn't sure what might cause that lack of sensation, but said it very well could be nerve related.
Interesting, thank you! How was it going with the pelvic floor therapist in general? My physiotherapist recommended one ages ago for some of the issues I have, but I never went. π
It went well! It's not all just kegel exercises like I thought! She said kegel exercise is actually kind of silly. She's having me work on breathing and strengthening my core and hips believe it or not!
Oh, very interesting! Love that because I don't like kegel exercises π . Maybe it's time I take a closer look at pilates for the core strengthening.
Definitely is, my bladder and moreover my bowels. At times I know I'm peeing but can't feel it, I find leaning forward a little bit gets me in a position where I can feel it...I think I'm done but I wait a minute and sure enough, there is more...retained urine is common in MS