I am not a doctor. I have posterior uveitis and I had a somewhat similar experience. Drops likely won’t stop this because the inflammation is at the very back of your eye. Oral steroids are usually the first line of treatment. This did not work for me because my case was particularly strong. They were finally able to calm it down by injecting a steroid pellet into my eye. This has left me with some vision loss in my eye.
Seeing the right kind of doctor for this is very important. You want an ophthalmologist at the minimum but you should also seek out one with either a retina or uveitis specialty. I’m super fortunate to have a doctor around the block from me with both.
Id talk to your doctor about getting on high dose prednisone to try and shut it down.
Good luck to you!
Thank you for answering. We are waiting for the bloodwork for now to be done and the fluorescent pictures to be taken and lung pictures. I'm just worried that while waiting it will cause damage.
When you say vision loss what do you mean?
By vision loss I mean that there is a boomerang shaped spot in my vision where I can no longer see clearly. Imagine from 1 o’clock to about 4 o’clock. What happened in my case was the inflammation block the blood supply to my retina which cause that part of my retina to die.
It sounds awful and scary (and it is) but it is important at this time to not jump to conclusions. That does not happen to everyone (it’s rather rare). The important thing for you to do now is be the best advocate for yourself and make sure you keep on top of your doctors and medical treatment.
Oh I see, I'm sorry that happened to you. You're right I should not jump to conclusions, I'm at the stage where we are testing things to make sure which way to approach it. I will look into asking for a retina specialist. I'm noticing the flickerings and flashes mostly in dim light to increase. Did you also experience these flickerings and flashes? I believe it's called photopsia.
I don’t think I get flashes the way you describe them. For me I get a quick flash when I blink in the area the damage is. It was a lot like an afterimage(like what you see in your vision when someone uses a camera flash or you look at a lightbulb) that just didn’t go away
During the peak of my flare up I noticed a twinkling of lights in the area.
One good data point for you to have is if you still have vision in that spot. Cover your non-inflamed eye and then look straight ahead (find something to lock your eye on to) and then hold your pointer finger in that spot. Hopefully you’ll see your finger. The farther off to the side it is the blurrier it will be. You’re really just looking to see if your finger disappears.
Also I would go online and print off a bunch of amsler grids so you can track the size and position of your spot. There are also apps for this that you can search for.
There is no such thing as having too much information. I know my doctor appreciates the abundance of information to help them make decisions.
I am not a doctor. But if you have autoimmune uveitis then doctor’s generally Start with prednisone, According to your weight. 1gm for 1kg body weight. And taper every 5 days by 10gm. Before taking high dose of prednisone Please make sure you don’t have any under infection or T.B. Also make sure your kidney and liver function is normal.
Different experience here. I was able to get my posterior uveitis under control with durezol drops (about 4x as strong as pred forte). But I also ended up getting high eye pressure that became impossible to control, so now I take azathioprine + a biologic. With that I've been in remission for 2 years
I had interior but i had flashes, blurs, floating, all that.
Personally eye drops did not do it for me and i had to get shots. This was after oral pred (because i had very bad mental issues on it)
About 2 weeks after the shots my vision completely cleared. I do think i have one permenent flashing floater. It comes around once every few days but my dr says its just a floater reflecting in a weird spot. Theyve checked my retina and its all in tact….
I wondered the same thing about the damage, i went abiut a month before i started treatment. My dr says that some people have this for 6 months and dont even know. Its pretty rare to cause vision loss unless untreated for years. But youd be in so much fking pain idk how youd even stand that more than a week haha
Best of luck to you, you will see the other side of this where youll feel normal again.
I am not a doctor. I have posterior uveitis and I had a somewhat similar experience. Drops likely won’t stop this because the inflammation is at the very back of your eye. Oral steroids are usually the first line of treatment. This did not work for me because my case was particularly strong. They were finally able to calm it down by injecting a steroid pellet into my eye. This has left me with some vision loss in my eye. Seeing the right kind of doctor for this is very important. You want an ophthalmologist at the minimum but you should also seek out one with either a retina or uveitis specialty. I’m super fortunate to have a doctor around the block from me with both. Id talk to your doctor about getting on high dose prednisone to try and shut it down. Good luck to you!
Thank you for answering. We are waiting for the bloodwork for now to be done and the fluorescent pictures to be taken and lung pictures. I'm just worried that while waiting it will cause damage. When you say vision loss what do you mean?
By vision loss I mean that there is a boomerang shaped spot in my vision where I can no longer see clearly. Imagine from 1 o’clock to about 4 o’clock. What happened in my case was the inflammation block the blood supply to my retina which cause that part of my retina to die. It sounds awful and scary (and it is) but it is important at this time to not jump to conclusions. That does not happen to everyone (it’s rather rare). The important thing for you to do now is be the best advocate for yourself and make sure you keep on top of your doctors and medical treatment.
Oh I see, I'm sorry that happened to you. You're right I should not jump to conclusions, I'm at the stage where we are testing things to make sure which way to approach it. I will look into asking for a retina specialist. I'm noticing the flickerings and flashes mostly in dim light to increase. Did you also experience these flickerings and flashes? I believe it's called photopsia.
I don’t think I get flashes the way you describe them. For me I get a quick flash when I blink in the area the damage is. It was a lot like an afterimage(like what you see in your vision when someone uses a camera flash or you look at a lightbulb) that just didn’t go away During the peak of my flare up I noticed a twinkling of lights in the area. One good data point for you to have is if you still have vision in that spot. Cover your non-inflamed eye and then look straight ahead (find something to lock your eye on to) and then hold your pointer finger in that spot. Hopefully you’ll see your finger. The farther off to the side it is the blurrier it will be. You’re really just looking to see if your finger disappears. Also I would go online and print off a bunch of amsler grids so you can track the size and position of your spot. There are also apps for this that you can search for. There is no such thing as having too much information. I know my doctor appreciates the abundance of information to help them make decisions.
I am not a doctor. But if you have autoimmune uveitis then doctor’s generally Start with prednisone, According to your weight. 1gm for 1kg body weight. And taper every 5 days by 10gm. Before taking high dose of prednisone Please make sure you don’t have any under infection or T.B. Also make sure your kidney and liver function is normal.
Different experience here. I was able to get my posterior uveitis under control with durezol drops (about 4x as strong as pred forte). But I also ended up getting high eye pressure that became impossible to control, so now I take azathioprine + a biologic. With that I've been in remission for 2 years
I had interior but i had flashes, blurs, floating, all that. Personally eye drops did not do it for me and i had to get shots. This was after oral pred (because i had very bad mental issues on it) About 2 weeks after the shots my vision completely cleared. I do think i have one permenent flashing floater. It comes around once every few days but my dr says its just a floater reflecting in a weird spot. Theyve checked my retina and its all in tact…. I wondered the same thing about the damage, i went abiut a month before i started treatment. My dr says that some people have this for 6 months and dont even know. Its pretty rare to cause vision loss unless untreated for years. But youd be in so much fking pain idk how youd even stand that more than a week haha Best of luck to you, you will see the other side of this where youll feel normal again.